Mission of U.S. Pain Foundation:
The mission of U.S. Pain Foundation is to educate, connect, inform and empower those living with pain while also advocating on behalf of the entire pain community. As a 501 (c)3 non-profit organization dedicated to serving those who live with pain conditions and their care providers, U.S. Pain Foundation helps individuals find resources and inspiration.
The History of U.S. Pain Foundation:
- In late-2006, Paul Gileno founded the CT Pain Foundation focusing on patients helping patients through support and community interaction.
- The INvisible Project became the flagship program of the organization in 2010 to create pain awareness through photography and story.
- CT Pain went national on January 11, 2011 … becoming the U.S. Pain Foundation.
- U.S. Pain Foundation is the leading patient-advocacy organization. Committed to creating pain awareness by breaking down barriers and advocating for change, U.S. Pain ensures people with pain are heard and validated.
Current Facts and Statistics:
As of January 2016, U.S. Pain Foundation has:
- 70,212 members
- 300+ Pain Ambassadors and Advocates throughout the country
- Presence in over 960 offices of health care professionals nationwide
- Social media presence of over 100,000 followers
- Partners with over 200 other organizations, coalitions, alliances, associations and societies in order to work together for the improvement of all people with pain
2014 – U.S. Pain Foundation 990 Tax Return
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Founder and President
Paul Gileno is a strong force in the chronic pain awareness movement. His mission in life is to empower and support those living with pain. Having pain himself makes the issue of pain care a personal and public matter for him. After a work injury in 2003 left him living with degenerative disc disease, failed back syndrome and complex regional pain syndrome for over three years, Paul created U.S. Pain Foundation.
U.S. Pain is a 501c(3) nonprofit that exists to connect, inform, empower and advocate for the pain community. This grassroots organization continues to grow with over 70,000 members with representation in every state.
As the integral force behind the U.S. Pain Foundation team, Paul is determined to improve healthcare and make a difference. He believes that by exploring new ways to cope, those with pain can find personal answers that enable them to grow and live once more with meaning and purpose. Furthermore, he is committed to making sure the public better understands the tolls and trials those with pain endure. He validates pain and empowers the 100 million Americans suffering to become educated and proactive.
Striving to design programs that are informative and relevant to the pain community, he was the mastermind behind the pain warrior bracelet. This initiative unites, strengthens, validates and encourages the pain community to keep fighting for proper care. He was also one of the visionaries for the INvisible Project. The INvisible Project is a national campaign that illustrates the struggles and resilience of those with pain through photography and story. Additionally, he was instrumental behind the passing of Connecticut’s Act 11-169; legislation that has had a direct benefit on the medical care Connecticut residents living with chronic pain receive. The new law ensures that patients will have access to the medication that their doctor prescribes by putting limits on step therapy protocols instituted by insurance companies.
Besides his work with U.S. Pain, Paul is on the Advisory Board for PainPathways magazine. He also supports various organizations that raise awareness and fund research on behalf of the chronic pain community, as all endeavors shift perceptions about pain and motivate change. In May 2014, he was the recipient of the Unsung Hero Award for his stellar work in pain policy initiatives as well as his significant contributions to advance the social awareness of pain and suffering. Paul additionally received the “2015 Educator of the Year Award” from the American Society of Pain Educators (ASPE).
He resides in New York with his wife and two sons.