Awareness Campaigns

U.S. Pain Foundation makes it a priority to create awareness in as many ways as possible. One way to accomplish this is through various campaigns, initiatives and fundraisers. Below are a list of Awareness Campaigns and Fundraising Initiatives we proudly take part in.

Awareness Campaigns   |   Fundraising Initiatives   |   Ambassador of the Year Award

Awareness Campaigns

KNOWvemberPeople with Pain MatterChoosing OTC SafelyPAIN WARRIOR BRACELETPAM (Pain Awareness Month)BEAUTIFY IN BLUE

KNOWvember

#KNOWvember initiative is a month-long educational campaign focusing on all things chronic pain.

As the nation’s leading pain patient-based advocacy and education organization, the U.S. Pain Foundation sees this as another valuable opportunity to reach the public and raise awareness for the over 100 million Americans living with chronic pain.

Every day during the month of November, we will provide you with information about the complex disease of chronic pain. For 2016, the theme is “Raising aRAREness” – focusing on types of rare diseases often misunderstood and not well-known.

In addition, we will host various FREE webinars and Twitter chats, as well as other virtual events. Registration information for these events will be shared on our social media platforms and within our eNewsletter.

U.S. Pain Foundation wants to challenge us all to become more educated through #KNOWvember. Information is key to education, awareness, support and proper care!

We ask that you LIKE, SHARE and RETWEET our daily posts and upcoming virtual offerings. The fun begins now!

Join the #KNOWvember Campaign TODAY!

Facebook.com/U.S.PainFoundation

2016 KNOWvember Events:

November 6th from 4-6 PM EST: 540WMain KNOWvember Art Gallery Opening, titled INvisible Beauty in Pain. The show will be featuring the artwork of chronic pain warriors. To learn more about the event, visit: INvisible Beauty in Pain

November 7th at 12 PM EST:  Join Rare New England in this exciting webinar as the organization will be providing in-depth information surrounding its resources, efforts and upcoming conference.
Watch the presentation below:

 

November 14th at 6 PM EST: Twitter Chat, Polypharmacy: Are you at Risk? This chat will focus on America’s other drug problem: Polypharmacy. The National Council on Patient Information and Education (NCPIE) will navigate participants towards helpful resources and guidance surrounding this patient-risk.
Hosted by: @US_Pain
Guest: @TweetNCPIE
Hashtag to follow is #KNOWvember
You may also click on this link during the designated date and time to join the conversation: Polypharmacy Twitter Chat

November 20th at 7 PM EST: Healthy Eating Habits for Rare Diseases. U.S. Pain Foundation’s Pain Ambassador Calvin Eaton has made it his life’s mission to raise awareness and understanding of chronic pain and other “invisible” diseases. During this webinar, Calvin will share his knowledge and provide helpful tips he’s learned during his pain journey to manage pain. Interested participants may submit questions ahead of the webinar!
Email: livingwithfibro85@gmail.com
REGISTER HERE

November 29th at 12 PM EST: Don’t Take No for an Answer: Know Your Rights. This webinar, presented by Pain Ambassador Dania Palanker, will explore multiple issues regarding insurance coverage. Participants will gain a clear understanding as to their rights as a beneficiary and/or person living with chronic pain and/or a rare disease.
REGISTER HERE

 Watch the Presentation below:

People with pain matter logo final

U.S. Pain Foundation is proud to launch, People with Pain Matter, a new campaign geared toward uniting all pain allies together with one resound message: people with pain matter and need options to all treatment modalities, and not labels.

People with Pain Shirt Front Design Final  copy

We want the world to stand behind this campaign which calls on lawmakers and media to recognize the needs of those with pain. Did you know the NIH allocates less than 1% of its funding to developing new therapies for chronic pain? That must change. People with pain matter.

To Learn More About How To Become Involved, Visit:

PeopleWithPainMatter.org

#IAmAPainWarrior

Educating Consumers on Choosing and
Using OTC Pain Relievers Responsibly
 

The U.S. Pain Foundation knows the value of over-the-counter (OTC) medicines in helping Americans manage pain. However like any other medicine, there are risks when not selected and used appropriately. With a significant number of people living with pain every day, it’s absolutely essential that everyone knows how to choose the pain reliever that is most appropriate for them.

That’s why the U.S. Pain Foundation partnered with McNeil Consumer Healthcare to educate not just the pain community, but consumers’ at large, about the safe and responsible use of OTC pain relievers. In our recent consumer survey, we found that many consumers do not consider critical safety factors such as current medicines they are taking, pre-existing medical conditions, and their age when choosing OTC pain relievers. Consumers might think that all OTC pain relievers are interchangeable and are appropriate for everyone – but that is not true.

Consumer Survey Facts Sheet
  • Nearly half do not consider the prescription medicines they are currently taking;
  • More than half do not consider their pre-existing health conditions;
  • 2 in 3 do not consider other OTC medicines they are taking;
  • 3 out of 4 of those 60 and over do not consider their age; and 1 in 5 do not consider any of these important safety factors.

Consumer Survey Press Release

The good news is that better informed patients display better decision making when choosing which OTC pain reliever to take. When the U.S. Pain Foundation conducted the same survey among its members, we were pleased to see that our members carefully weigh their pain relief options.

U.S. Pain Membership Key Survey Findings                                   

U.S. Pain Membership Survey Results
  • About 7 out of 10 very often consider the impact of taking an OTC pain reliever with other prescription medicines (46% consumer survey)
  • 3 in 5 are very likely to consider personal health aspects important (45% consumer survey)
  • Over half are very likely to be very concerned about causing interactions between prescription medicines and their OTC pain reliever (38% consumer survey)

 The U.S. Pain Foundation believes that through continued educational efforts we can help more Americans make better informed decisions when selecting which pain reliever might be best for them.

What can you do to make sure you are selecting the appropriate OTC pain medicine for you?

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For more information on how to safely choose, use, and store OTC pain relievers visit:
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PAIN WARRIOR BRACELET

painwarriorbracelettU.S. Pain Foundation developed the Pain Warrior bracelet as an advocacy campaign to unite, strengthen and encourage the pain community to keep fighting for proper care. Composed of various bright colors to symbolize all the diseases pain affects, the bold words, Pain Warrior, are etched into the band. Whether living with lupus, reflex sympathetic dystrophy, multiple sclerosis, arthritis or any other pain condition, this colorful band connects us all. It represents our resilience to overcome, our ability to face adversity, and our courage to continue living.

We believe the pain community is filled with warriors. To us, a Pain Warrior is someone who bravely lives each day with pain while searching for answers. A warrior does not allow pain to define his or her, understanding one has a choice to either live in pain or with pain. Pain Warriors are inspirations.

Since its inception, U.S. Pain has seen a rise in members contacting us to become involved. It is a daily occurrence to have new members asking for ways to advocate to ensure access to care.

In 2016 alone: 46,789 bracelets were given out

Here is what some members are saying about the Pain Warrior bracelets:

I love this bracelet. Can I have more so my family and friends can wear them in honor of me? I wear my pain warrior bracelet everywhere.
Whenever someone asks me about my bracelet, I smile for I feel like I am part of making a difference. I am informing others about pain conditions that otherwise seem invisible.”
My bracelet has helped me become an advocate. As long as I am wearing my Pain Warrior bracelet, I feel strong and able to share my story and demand better care for myself … and others.

U.S. Pain Foundation salutes all people with pain. It is our hope that the Pain Warrior bracelets not only unite the pain community, but also create awareness. Together, we make a difference.

To receive your own complimentary bracelet, share your story with U.S. Pain Foundation.

pam_header3In 2001, a coalition of groups and organizations established September as National Pain Awareness Month. The goal was to increase awareness about the effects of pain and to educate citizens about the advanced treatment options available to help alleviate pain. Now, fourteen-plus years later, September is still dedicated to raising public awareness around issues related to pain and pain management. While great strides have been made in pain care since 2001, we still have work to do.

So what is U.S. Pain Foundation doing to move the cause forward? In addition to hosting (and encouraging pain warriors to do the same) pain awareness events, here are some of the things we did during the month of September.

  • U.S. Pain Foundation Pain Awareness Pledge
    • This is way to unite pain warriors, caregivers, healthcare professionals, lawmakers and others in the form of a pledge. The pledge is a simple way to show the nation that chronic pain is a disease, which needs to be addressed through policies, education and fair access to treatments.
    • By electronically signing the pledge, you are empowering the pain community while supporting the organization’s mission. We hope that you will join us in our effort to eliminate the discrimination and stigmas within society when it comes to invisible illness.
    • View the 2015 Pledge HERE
  • 30-Day Challenge
    • A fun way to be active and beneficial within the pain community during Pain Awareness Month in September. The goal is to complete as many of these challenges as possible in an effort to become the voice for those who cannot speak.
  • Beautify in Blue
    • By placing blue ribbons and signage on trees, flagpoles, lawns, libraries, community centers, town halls and similar venues within communities, this chronic pain awareness campaign highlights the bravery, courage and perseverance of pain warriors.
  • Pain Proclamations

What happened in past years during September? Look Here!

2015 PAM

Beautify in Blue: Highlighting the Bravery of Pain Warriorsbeautify in blue logo
In the United States alone, over 100 million individuals live with chronic pain; that’s not including the undocumented number of pediatric pain in America. With these significant numbers and statistics, this visual campaign not only raises awareness concerning the varying types of invisible pain, but also empowers fellow pain survivors, validating that they are not alone and are supported by their community.

By placing blue ribbons and signage on trees, flagpoles, lawns, libraries, community centers, town halls and similar venues within communities, Beautify in Blue highlights the bravery, courage and perseverance of pain warriors.

How does the program work?
U.S. Pain Foundation asked its members and Pain Ambassadors who would like to participate in a visual awareness campaign. After filling out a commitment form that ensured the individual would be responsible for the set-up, maintenance and breakdown of the Beautify in Blue materials, each participant then approached his or her local governing body with a campaign letter, explaining the program and requesting that their town participate.

Once approved at the municipal level, the signs and ribbons remain displayed for the entire month of September to coincide with Pain Awareness Month (PAM).

“The main goals of this program is to raise awareness for the pain community as well as empower those afflicted with pain,” says Executive Director of U.S. Pain Foundation, Casey Cashman. “Towns and cities can help residents know they are not alone on their pain journeys. This visual program validates their pain.”

2014 was the pilot program.

In 2015, over 50 communities participated.

U.S. Pain Foundation aims to top that for 2016!

 

Interested in having your community beautified in blue?

 

Fundraising Initiatives

FIGHT GONE BADREAL HOPE, REAL HEROES GALAPOINTS FOR PAINDress Down DaysPain Warrior BraceletsAmazonSmileDine to DonateALEX AND ANIBRAVELETSGIVING TUESDAY

Fight Gone Bad

header_logoFight Gone Bad is a fundraiser in the form of a CrossFit workout. The workout consists of five different movements and three consecutive rounds. When CrossFit Headquarters decided to no longer lead this fundraiser WOD, CrossFit gyms around the nation had the opportunity to continue this event as an independent fundraiser, highlighting a charity they wish to support.

Since 2012, each October, CrossFit Los Altos has been sweating (and raising funds!) on behalf of U.S. Pain Foundation to support the pain community by raising awareness.

We, at U.S. Pain Foundation, greatly appreciates the relationship that has been formed and their continued support of chronic pain warriors. Thank you CrossFit Los Altos and FIT for partnering with us.

Funds Raised

  • 2016 — $12,505
  • 2015 – $17,241
  • 2014 – $9,145
  • 2013 – $4,745
  • 2012 – little over $4,000

Would you like to host a FGB at your box?

Would you like to support this event? Check back here in September for more ways to get involved!

cfla FIT logo_with_focused_new

On October 22nd, U.S. Pain Foundation will be hosting The 2nd Annual Real Hope, Real Heroes Gala at the Sheraton Fisherman’s Wharf Hotel in San Francisco. The evening honors the 2016 INvisible Project participants from the “Kids and Families” and “Veterans” edition.

The INvisible Project is the foundation’s flagship program, bringing visibility to the invisible, internal struggles of people living with chronic pain. The project shows the power of stories, and how experiences shared can bring about newfound compassion, and a deep desire to take action.

People with pain matter.

The Gala raises public awareness about chronic pain and the mission of U.S. Pain Foundation. Yet most importantly, the evening will recognize children and our nation’s heroes for their strength, courage, wisdom, resilience and willingness to share their lives with us.
The proceeds from this event are used to fund the INvisible Project and our other programs at U.S. Pain Foundation.
  • Details: 
    • Saturday, October 22, 2016
    • Sheraton Fisherman’s Wharf Hotel – San Francisco, CA
    • 6-10pm – Cocktail Hour begins at 6pm with Dinner to follow
    • Silent Auction, DJ, and Photo Booth
    • Cocktail Attire
    • Register: RHRH.eventbrite.com

Honoring

    New Kids and Families Cover copy        FC_IP_VETERAN_Draft_A_V2 copy

  • For More Information or To Register, visit:

RHRH.eventbrite.com

RHRH_postcard_5x7_front copy

 

Points for Pain

Points for Pain LogoPoints for Pain is a fundraiser to benefit the U.S. Pain Foundation’s Pediatric Pain Program.  It was started when a 7th grader wanted to help make a difference.

Tyler Cashman has been affected by chronic pain in a very personal way – his mom, Casey, has lived with chronic pain every day since 2008.  Tyler has seen how chronic pain impacts families on an every day basis.  He has met several children facing these challenges and wants to make a difference for them.  While he cannot take away their pain, he does know if he helps raise awareness for invisible illnesses and raise funds for the programs, it will empower them and help them along their pain journeys.  Tyler wants to help them realize they are not alone in their battle and that we all support them.

Children living with chronic pain face challenges every day. Every minute needs to be planned out and accounted for as much as possible to eliminate the daily stresses that could cause a “flare up.” Even going to school – for a full day, a half-day, or a few hours – can be difficult.

 

Points for Pain is one way kids can get involved in helping other kids!

How this fundraiser works: This fundraising and awareness campaign can be used for any sports team. Speak to your coach regarding your interest in hosting such a fundraiser. Once approved, U.S. Pain will provide you with further information about the organization and its programs. This will help you when you speak with your teammates and parents about the fundraiser and why you want to do it.

What you will then do is keep a running tally of total points that each person scores for the season and total points for the teams. People can either make donations based on pledges they receive for each point scored or a general donation. Both are perfectly fine!

If this is a school team, you can send out to everyone at the school to make them aware of what is going on and keep a running total somewhere in the school. If it is a travel or recreation team, you can speak to other teams to see if they are interested in joining the cause as well. Perhaps you can get other teams in the school district to join forces with you.

U.S. Pain will provide all information you may need and we will also promote the event through social media and our events calendar. We will even setup a FirstGiving page for you to help raise funds too. U.S. Pain Foundation will send out a thank you acknowledgement for all donations received.

To help promote your fundraiser as well as share with our members, U.S. Pain asks that you send pictures from the event.

If you are interested in hosting a Points for Pain fundraiser, please contact: casey@uspainfoundation.org.

To learn more about the current Points for Pain fundraiser, visit our FirstGiving Page

Dress Down Days

There are many different options to help raise pain awareness as well as funds for U.S. Pain Foundation. Hosting a Dress Down Day for people living with chronic pain can be held at your school or office. These events are very easy to plan and execute, and U.S. Pain will help you obtain permission and send you any information you may wish to hand out in order to raise awareness. The concept is people will pay a set-price to dress down for the day, following the set dress code guidelines of your school or office.

Once the day is over, simply send a check along with the donation form to:

U.S. Pain Foundation
c/o Fundraiser
670 Newfield Street
Suite B
Middletown, CT 06457

U.S. Pain Foundation will send out a thank-you acknowledgement once the donations are received.

We also ask that you send us in a picture the day you are hosting the event so we can acknowledge and promote on our social media as well as website.

For more information, contact Casey at casey@uspainfoundation.org.

Pain Warrior Bracelets

Another easy fundraiser and chronic pain awareness campaign would be having your school or local teams wear the U.S. Pain Warrior bracelets. For a set price, you could wear the colorful bracelet to raise chronic pain awareness.

How It Works: Notify U.S. Pain that you would like to sell the bracelets as a donation. We will then mail the bracelets with U.S. Pain materials to you to help raise awareness and make your fundraiser a success!

Once the fundraiser is over, simply send a check along with the donation form to:

U.S. Pain Foundation
c/o Fundraiser
670 Newfield Street
Suite B
Middletown, CT 06457

U.S. Pain Foundation will send out a thank-you acknowledgement once the donations are received.

We also ask that you send us in a picture the day you are hosting the event so we can acknowledge and promote on social media.

If you have any questions, or would like to get started, please contact Casey: casey@uspainfoundation.org.

AmazonSmile

U.S. Pain Foundation has joined AmazonSmile. This is simplest, easiest and most automatic way for you to support U.S. Pain Foundation every time you shop!

Simply visit http://smile.amazon.com/ and choose U.S. Pain Foundation as the organization you wish to support.

Then each time you make a purchase through AmazonSmile, Amazon will give to U.S. Pain in a form of a donation. You will find the exact same low prices as Amazon.com, but with the added bonus that Amazon will donate a portion of the purchase price to us. It is that easy and there is NO COST to you!

amazon smileNOW YOU CAN SMILE WHILE YOU SHOP KNOWING YOU ARE SUPPORTING A CAUSE NEAR AND DEAR TO YOU!

 

 

Dine to Donate

Many chain restaurants will offer Dine to Donate options for charities. These events are easy to set up and offer a great opportunity to raise awareness as well as funds to support the programs of U.S. Pain Foundation. Some of the restaurants offering Dine to Donate are: IHOP, Applebee’s, Friday’s, Houlihan’s and many others.

How It Works: Speak to the manager at your local restaurant to find out if they will host an event. Once a date is secured, U.S. Pain will help you set up a flyer to hand out and post in other local establishments to promote the event. We will also post on our events calendar and promote through social media. The day of the event, we will provide you with handout material to give to all patrons of the restaurant. This will help raise awareness for those living with chronic pain.

Following the event, simply send a check along with the donation form to:

U.S. Pain Foundation
c/o Fundraiser
670 Newfield Street
Suite B
Middletown, CT 06457

U.S. Pain Foundation will send out a thank-you acknowledgement once the donations are received.

We also ask that you send us in a picture the day you are hosting the event so we can acknowledge and promote on our social media as well as website.

If you are thinking of hosting a Dine to Donate, contact Casey: casey@uspainfoundation.org.

Alex and Ani

alex-and-ani-logoU.S. Pain Foundation has been honored to team with Alex and Ani for “The Charmed by Charity” events. During such an event, individuals have the opportunity to visit a specific Alex and Ani storefront or call in an order … with a portion of proceeds going to U.S. Pain Foundation.

In 2014, U.S. Pain Foundation raised nearly $1,000 for our programs and initiatives through “The Charmed by Charity” events. U.S. Pain especially wants to thank our Pain Ambassador, Jeannette Rotondi, who hosted, planned and brought this concept to fruition.

Interested in hosting an event at your local store?

Please look for more Alex and Ani events in the near future!

Bravelets

Bravelets logo“There are times in all of our lives where we need to be brave – whether for ourselves, for our family, for our friends, or even for a complete stranger. Bravelets™ bracelets are more than just something to wear on your wrist. They are a symbol of hope, strength and courage. They are designed to help you be brave in the toughest of times.” -Bravelets™ website

Now there are Bravelets, for men and women, in support of the pain community and U.S. Pain Foundation.

Visit the U.S. Pain Brave Page to shop!

$10 from each Bravelet purchased will go directly to U.S. Pain Foundation!

 

#GivingTuesday

Giving Tuesday logo#GivingTuesday is a global day dedicated to giving back. Entering its fifth year, #GivingTuesday has become a movement that celebrates and supports giving and philanthropy.

Observed on the Tuesday following Thanksgiving, U.S. Pain Foundation has been participating in this global day of giving for two years. Please consider making a tax-deductible donation to U.S. Pain Foundation on #GivingTuesday! No donation is too small!

Please check back here in early-fall 2016 for more #GivingTuesday information to share with your family and friends. Thank you for helping us raise awareness and funds.